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Healthy Eating With Your Little Fusspot!

Almost every parent ends up with one child that always was or becomes a fussy eater at some point. Usually somewhere around 2-3 years old (the dreaded terrible-twos phase!) Many a parenting article will have you believe it's caused by some buried emotional trauma/bad habit accidently created during the weaning onto solids stage. Coincidentally it's usually an article that offers a miracle cure for the fusspots in your life, such as to reel you into buying an extortionately priced section plate that make meal times into a competition (enter the Fred Dinner Winner™ plate) or if they're not trying to sell you something as a quick fix to a very normal development phase in every child's life, they're outlining what you SHOULD of done to prevent your little(s) from turning their noses up at your 'vegetable homemade lasagne' or your 'veggies with a dab of delicious houmousy goodness.' I've seen the later targeted a lot towards parents who chose tradit…
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Changing Places Campaign | How 1 Mum's Petition is Changing Lives!

Tuesday 20th February 2018 is a landmark day in the lives of people with thousands of various profound disabilities and chronic illnesses to where toileting out in public is either impossible or vastly undignified. Today could mark the day accessible toilets became truly accessible to all 250,000 UK residents who require more than just a set of grab rails around the loo and an often disconnected 'emergency' pull cord.

It all started from a petition set up on the ever trusty Change.org site by Lorna Fillingham, a Mum of 2 from Scunthorpe who had no choice but to lay her precious little girl Emily-May, down on often urine soaked public toilet floors in a bid to meet her toileting needs. Why you ask? Emily-May (7) is a wheelchair user with a rare condition that involves global development delay.  Impacting on many areas of her daily life including still needing to be laid down to be changed to remain well and comfortable. GDD is just ONE of thousands of disabilities/chronic illn…

Winter Wheelchair Ware | Top 5 !

As the February freeze is in full swing I, like many another person with a disability are having to think outside the box to practically keep warm out and about...

I know what you're probably thinking. What's the big deal? Throw on a big padded coat and a hat and away you go. Surely this isn't blog worthy. What you may not be aware of if you're able-bodied and reading this, is that people with mobility problems and particularly muscle-wasting conditions (such as Muscular Dystrophy), feel the cold 10x more than someone without. Mobility issues causes poor circulation, especially in the legs. Wheelchair users are particularly at risk. That's why you see older people in their wheelchairs with the trademark tartan blanket over their legs. You keep your body relatively warm by just doing your usual day-to-day activities because you're constantly moving around. Those with muscle-wasting conditions have the added freeze factor(if you will!) of not having the muscle b…

Personal Assistants 101 | My Worst PA Experiences

Just like any employer, those under the Direct Payments scheme - interviewing, hiring and managing their own staff for their care needs get their fair share of 'bad eggs.' Before I embarked on moving from CHC Adult Social Care agencies to Direct Payments, I often wondered if my interview experiences would be much like those on the hit film, 'Inside I'm Dancing.'


Rory and Michael are two friends whom become acquainted through circumstance. Both were put in a nursing home leading to their inspiring journey to independent living, interviewed applicants from all walks of life. The ignorant, the awkwardly silent to the jesus-will-cure you types... The film reigns true on what it's like hiring your own Personal Assistants. As you'll see below in my recollection of negative PA encounters in, 'Personal Assistants 101 | My Worst PA Experiences'
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The Textbook PA

In my very early interviewing days (when I didn't have a clue really!) I hired a…

Chronic Pain with Neuromuscular Disease

Disclaimer: This blog post contains sensitive content some readers may find upsetting. I'm merely sharing my personal experience on this complex topic, therefore it should NOT be a substitute for seeking proper medical advice. Remember everyone and every circumstance is different.

When you research Neuromuscular Disease (NMD) and pain, medical extracts will tell you that they don't or shouldn't cause pain. What they fail to mention is that they mean the disease itself isn't painful, though the symptoms associated can very well be. Without the symptoms you can't have a Neuromuscular Disease as they clinically present with muscle weakness and wasting that is often progressive in nature as the main signs for clinical diagnosis, along side the genetic mutation to pinpoint the "form" of which there are over 60! Therefore in my opinion and I'm sure many others with NMDs will agree, if the symptoms associated with muscle weakness and wasting cause pain and th…

A Guide to | Nesting with a Disability

Pretty much everybody knows about the 'nesting' phase when you're awaiting the arrival of a little one. Whether that phase be from the words "You're pregnant!" or a few days before the big day, nobody escapes that need to make sure everything is ready! The same goes for parents with the added challenge of a disability and/ chronic illness.It may shock a lot of people who aren't part of this minority community, but there are next to NO products out on the market that were specifically designed for parenting with any form of impairment. Leaving myself and the growing amount of adults with disabilities who go on to have families either;
a) Asking friends or relative with DIY skills to actually build baby furniture and such to aid them in day-to-day life as a disabled parent. OR b) Having more involvement from able-bodied persons than they actually would of needed if only there were more catered products on the market! In an effort to help enable new pa…