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About Me

(IMAGE: Collage left to right; Abbigail wearing red glasses smiling, me in summer hat + Ava in shopping trolley with giant teddy) 

I am a 29 year old stay-at-home Mum of 2 precious little girls living in Bolton, Greater Manchester UK, living with a progressive life-limiting muscle wasting condition.

My children are my world and my primary focus is spending time and making ever lasting memories as a family. I take way too many photos 📸 so they'll never forget any of our little adventures together. Giving them a normal a childhood as possible given the unique circumstance of parenting with a disability. Life is what you make it and I intend on helping my girls realise the beauty of it. Every moment is precious and my hope is one adventure at a time they will embrace it as much as I do. Instilling good self-confidence as young girls aswell as teaching patience, compassion and love a-long the way! Typical Mum dreams ♥... 

I've been an active campaigner and disability activist from a young age. Working prominently as a Trailblazer and as of early 2017 - Transport Ambassador with Muscular Dystrophy UK. Participating in high profile awareness campaigns such as the #FitToBurst Changing Places Campaign - trying to implement the need for fully accessible toilets across the UK, the End of the Line report on better improving public transport and the Locked-Out campaign looking into the lack of accessible housing. To find out more of what I'm specifically involved in, jump over to the Campaigns & Projects tab at the top. 🔝 

I also am co-founder of The Minicore Project - Providing Strength Through Support for families affected by Multiminicore Myopathy. A project close to my heart and that I'm extremely passionate about. 

If I've exhausted my littles by bedtime to where I have some 'me time' and I've caught up with current campaigns and project affairs; I do like to read Cathy Glass or Casey Watson novels on fostering, arts and crafts (this includes DIY World Book Day costumes for the littles!), listening to music and travelling to new places/trying new things. 

Thank you for being a much valued reader of my life as an ambitious turtle, I hope my posts help somebody, somewhere, educate people who are curious on matters raised or at least give you a laugh 👍 




Comments

  1. I have really enjoyed reading about your experiences with your life and the section on PAs is so funny, I myself have had some very amusing and not so great issues with Assistants. I have a high level Spinal injury and live in Hindley . Although we have very different conditions I definitely see a huge crossover when it comes to certain issues. It's important that we share our stories and our lives in hope that we may help others feel they are not alone in their struggles and triumphs. Thank you for sharing my name is Lynsey mebeforemyself@yahoo.com😊

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