Skip to main content

About Me

(IMAGE: Collage left to right; Abbigail wearing red glasses smiling, me in summer hat + Ava in shopping trolley with giant teddy) 

I am a 29 year old stay-at-home Mum of 2 precious little girls living in Bolton, Greater Manchester UK, living with a progressive life-limiting muscle wasting condition.

My children are my world and my primary focus is spending time and making ever lasting memories as a family. I take way too many photos 📸 so they'll never forget any of our little adventures together. Giving them a normal a childhood as possible given the unique circumstance of parenting with a disability. Life is what you make it and I intend on helping my girls realise the beauty of it. Every moment is precious and my hope is one adventure at a time they will embrace it as much as I do. Instilling good self-confidence as young girls aswell as teaching patience, compassion and love a-long the way! Typical Mum dreams ♥... 

I've been an active campaigner and disability activist from a young age. Working prominently as a Trailblazer and as of early 2017 - Transport Ambassador with Muscular Dystrophy UK. Participating in high profile awareness campaigns such as the #FitToBurst Changing Places Campaign - trying to implement the need for fully accessible toilets across the UK, the End of the Line report on better improving public transport and the Locked-Out campaign looking into the lack of accessible housing. To find out more of what I'm specifically involved in, jump over to the Campaigns & Projects tab at the top. 🔝 

I also am co-founder of The Minicore Project - Providing Strength Through Support for families affected by Multiminicore Myopathy. A project close to my heart and that I'm extremely passionate about. 

If I've exhausted my littles by bedtime to where I have some 'me time' and I've caught up with current campaigns and project affairs; I do like to read Cathy Glass or Casey Watson novels on fostering, arts and crafts (this includes DIY World Book Day costumes for the littles!), listening to music and travelling to new places/trying new things. 

Thank you for being a much valued reader of my life as an ambitious turtle, I hope my posts help somebody, somewhere, educate people who are curious on matters raised or at least give you a laugh 👍 


  1. I have really enjoyed reading about your experiences with your life and the section on PAs is so funny, I myself have had some very amusing and not so great issues with Assistants. I have a high level Spinal injury and live in Hindley . Although we have very different conditions I definitely see a huge crossover when it comes to certain issues. It's important that we share our stories and our lives in hope that we may help others feel they are not alone in their struggles and triumphs. Thank you for sharing my name is Lynsey😊


Post a Comment

Popular posts from this blog

Changing Places Campaign | #FitToBurst - Putting my health on the line due to inaccessible toilets

For 250,000 disabled UK residents, going to the toilet is a military operation. Only you never hear about it. Why? Because talking about going to the toilet isn't exactly fun. Sure we joke about those type of Facebookers who write a status about every single move they make - including going to the loo! Though for the majority, going to the toilet is a private, dignified human need that is straight forward and requires no second thought. Only those 250k I just mentioned are living a very different existence, merely because going out of the house means they're venturing away from the only accessible toilet that meets their needs.

I am 1 of those 250,000 and for 14 years I've been too stubborn and proud to stand up (no pun intended! 😜) and say, actually it's 2017 - surely I should be able to go out freely and not have to worry about the next time I need the loo, ontop of all the access issues I and every other wheelchair user faces on a daily bases!

So what exactly is …

Letting Go Of What I Can't Do With My Children | #DisabledMumLife

I'm very much a researcher, an adapter, a think ahead kind of person, and that also applies to my role as a Mum. In every single problem my disability causes I automatically think outside the box and find a way to do whatever it is I'm struggling with.Yes it'll be different, maybe a bit unorthodox but hey, if it enables me to go beyond my limitations when it comes to the girls, I'll try said idea at least once. What have I got to lose? If I get an idea that'll problem solve in my head and I don't try, you blink and your kids grow up and I'd be left wondering if I could of been more involved in this or that if I'd only tried to do it by doing x, y, z.... You catch my drift?

But I'm also a realist...

And this is where the hardest part of parenting for me comes to light. As much as I do things differently, get creative, do my research, use products on the market to enable me etc... There are still some things that I cannot adapt enough for me to do indep…

Locked-Out | The REAL Cost Of Senseless Social Housing Policies

As soon as I found out I was pregnant one of my first thoughts was, “Where are we going to live?” The extension that was built onto my childhood home had barely enough room to swing a cat, despite having a great wet room. Sleeping arrangements with a cot etc weren't going to work. Neither would my partners parents home, as there were no suitable amenities.

Upon visiting the Citizens Advice Bureau, we were advised against looking at private renting as most landlords will not allow permanent adaptations (ie. ceiling track hoists) and felt social housing would be the more favourable choice. Reason being with social housing, the property is allowed to be adapted to almost any mean to suit a disabled person's access and care needs.

So with that knowledge I went to Bolton Council and filled in an application form for a council property under medical grounds. With it I included proof that I was 6 weeks pregnant so that we wouldn't fall victim of the bedroom tax as we would be us…